First Steps After Getting a Parkinson’s Diagnosis
Getting through a recent diagnosis of Parkinson’s disease can be an emotional roller coaster and comprehending all the information of doctor speak!
I want to reassure you that you are in the right place to gather the necessary information for moving forward.
It is increasingly important as a patient of PD, you advocate for self-care by speaking up, taking notes, asking questions, educating yourself and thinking positively.
- Parkinson’s is not just one disease,
- No two people have the same level of symptoms and experience them differently
- Parkinson’s is NOT Alzheimer’s – contrary to popular opinion
- There are other illnesses associated with Parkinson’s so be sure you get a proper diagnosis. Some are:
Supranuclear Palsy (PSP), Multiple System Atrophy, dementia with Lewy bodies, Corticobasal Degeneration (CBD) multiple small strokes, Alzheimer’s or Parkinsonism to name a few.
What to do to after diagnosis:
- Know your rights in terms of disability coverage, family leave (for caregivers) and elder rights,
- Confirm your neurologist or movement disorder specialist you’ll be working with,
Prepare a list of your questions for the doctor before appointments:
- symptoms you need to be aware of — both motor and non-motor
- how existing medical conditions may affect your health over time
- Medication protocols related to PD and use of other medications or non-medical treatments
- READ- Build your library of books and resources